Gaye Cayot
gaye.cayot@gmail.com
562-743-5151
1pm-3pm
My daughter is 21 years old and has been in chronic pain since she was 9 years old. For most of her life we believed that the illness affecting her was Reflex Sympathetic Dystrophy, however, that diagnosis did not really explain many of her symptoms. About two years ago we began to suspect that she actually has Hypermobility Ehlers-Danlos Syndrome. The National Institute of Health lists 59 possible symptoms of which Anna has 27.  Anna's right shoulder is the loosest joint in her body and is causing constant and intense pain.  This summer we tried to get her into Mayo Clinic, but they refused to see her because there is no treatment for H-EDS.  We are seeking some alternative treatments right now, but we need to be very careful not to make her worse. I would appreciate very much if you would respond whether you think you can help her or not. Thank you very much for your time.
We have used chiropractic and acupuncture treatment for years. However, the last couple of times the chiro treatment seemed to make her worse and the last few acupuncture  appointments had no effect.  Deep tissue massage makes her feel better, but only for a few hours.
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September 25, 2019
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