Hi, 

I have debilitating symptoms that have most definitely changed in severity after my 3rd son, although I've had so many symptoms my entire life. Worsening degeneration of joints, severe (bed ridden) pelvic pains, and more during each pregnancy. 
I am now struggling to move, speak, take care of my stressful life and I am almost certain I have CCI ever since I found out about it and was diagnosed with hEDS last year. I score 9/9 in the beighton score and have almost every hypermobile EDS symptom. Dry eyes, TMJ joints already replaced and undergoing a re do jaw surgery for the 6th time in a few weeks. 

I have swollen veins behind my knee that no Dr has even looked at yet which makes my knees feel arthritic and stiff like they have so much inflammation. My neuro has only seen me through video calls, but I have gone to do all types of testing. I have "POTS" but I have always not understood why my symptoms seem much worse and different than those with actual POTS only . 
I know now it has to be CCI. I cannot hold my own head up, I am trying now to tuck my chin back for correct posture and legitimately my head just "fell", not only did my muscles feel weak and "let go" but even if I tried hard, there's something that literally making it "fall off".

My passing out symptoms, dizziness with every neck movement, BP issues and heart rate rises cause me to fall to my floor, put my hands on my knees and lower my head etc. So many more things. Prolapsing organs already etc. 

I have supine MRI w/o contrast, brain MRI with contrast , upright MRI w/o, supine CT with lateral flexion, xrays with flexion/ext and I do have many diagnosis that do not surprise me such as, spondylosis in 2 different areas in cervical as well as lumbar, anterolisthesis and retrolisthesis in cervical, straightened cervical curve, scoliosis my whole life upper and lower back, bulging discs in upper and lower back, c4-c5 is one of disc bulge where it also indents the ventral thecal sac w/o cord compression, degenerative changes in c5-c6

CT supine impression: 37 degrees of rotation of c1 relative to c2 w/ right lateral rotation, and 45 degrees of rot of C1 relative to C2 w/ left lateral rotation, but I had my head on a pillow in CT machine so I could of rotated more if that means something. 

I am in debilitating pain, chronic every single day is torment and have to be on low dose opioids and a bunch of meds just to function. Please help me by agreeing to hopefully review my images or allowing me to send them for you to show or ask another DR who would be interested in helping me out. 
I am desperate as these symptoms are real, horrible and I do not have Drs, family, friends, or anyone except for my husband who sees me daily understand. My poor kids need a mom and haven't had one in a long time. I used to go to the gym and run miles daily. I am go-go-go and type A personality. This is not me, which is hard for people to realize, that I must really be in agony to have changed so much. 
I see you are familiar with CCI here, could you check my diagnosis' which are so many. 
I have numbness, nerve pains even lhermitte phenomenon.